BioLinked | ImpactLife

biolinked overview

BioLinked’s goal is to connect extraordinary people like you with the nation’s most promising research. More than 85% of clinical research studies do not meet their enrollment goals due to lack of participants causing delays and/or termination of the entire study. When you join the BioLinked Registry, you become a part of the research community that is bringing new hope to patients as soon as possible.

Your participation in the BioLinked community propels clinical research that finds cures, paving the way for a healthier tomorrow.

register with biolinked

It only takes five minutes on average to sign up for a BioLinked Registry profile. Once you have created a BioLinked Registry Profile, you are ready to fill out the questionnaire which goes into more depth about your social and health history. This part takes about 15 minutes on average to complete.

If you match a researcher’s need, a representative from ImpactLife will contact you. If you have any interest in participating, they will explain what is needed, and how that may affect you. The choice to move forward is completely up to you. Unless you agree, the researcher will never know your identity.

BioLinked Registration Form

Already created your BioLinked Account? Login here

research studies

Start Date	Overview
Check back for start date.	Have Hidradenitis Suppurativa (HS)? We’re working to diagnose conditions like HS more easily, and that starts with volunteers like you. This study is open to anyone with HS who is over 18 and is not currently pregnant. The study consists of taking up to 43 photos, including full body, from the comfort of your own home. These photos will be uploaded to a secure platform from your own device and will be used to help teach AI models to recognize specific skin conditions. All data collected in this study, including the images you provide, will be treated as strictly confidential in compliance with data protection laws and regulations. Participants will receive up to $625 in compensation.
Interested in participating in any of the above research studies? Click on the "BioLinked Registration Form" button above!

Start Date

Overview

Check back for start date.

Have Hidradenitis Suppurativa (HS)? We’re working to diagnose conditions like HS more easily, and that starts with volunteers like you.

This study is open to anyone

with HS
who is over 18 and
is not currently pregnant.

The study consists of taking up to 43 photos, including full body, from the comfort of your own home. These photos will be uploaded to a secure platform from your own device and will be used to help teach AI models to recognize specific skin conditions.

All data collected in this study, including the images you provide, will be treated as strictly confidential in compliance with data protection laws and regulations. Participants will receive up to $625 in compensation.

Interested in participating in any of the above research studies? Click on the "BioLinked Registration Form" button above!

For additional information

If you have questions about BioLinked or the BioLinked Participant Portal, email support@bio-linked.org and a member of the BioLinked team will respond to your inquiry as soon as possible.

See Frequently Asked Questions below

FAQs

Why is ImpactLife partnering with BioLinked?

ImpactLife is an important part of your community. They recognize that there is great potential to make an impact in healthcare by connecting their extraordinary donors with lifesaving research.
Who can I contact if I have more questions about BioLinked?

If you have questions about BioLinked or the BioLinked Participant Portal, email support@bio-linked.org and a member of our team will respond to your inquiry as soon as possible.
How do I become a BioLinked Participant?

See Step 1 above to join the BioLinked registry. Enrollment is open to anyone who lives in the United States.
What will be expected of me if I join the BioLinked Registry?

If you decide to join the BIoLinked Registry, you may be contacted to be a part of Clinical Trial or Study.
What type of studies will I be recruited for?

The type of studies that you will be recruited for are based on eligibility requirements.

The eligibility requirements are determined by a research study’s protocol. Some studies seek participants who have the illnesses or conditions being studied, others are looking for healthy people, and some are limited to a predetermined group of people.
Will I ever be pressured to participate in research?

Absolutely not! If you match a researcher’s need, a representative from ImpactLife will contact you. If you have any interest in participating, they will explain what is needed, and how that may affect you. The choice to move forward is completely up to you. Unless you agree, the researcher will never know your identity.
Will I receive payment for participating in a clinical trial/study?

Possibly, but each clinical trial/study is different. Compensation can depend on the length of the trial, the treatment or procedures performed and is dependent on the amount budgeted for the clinical trial/study.
What will be expected of me if I am accepted to a clinical trial/study?

Every clinical trial/study will be unique. Some studies are short and only require a single visit to your local blood center. Other studies may involve multiple visits over a period of time. Depending on the nature of the study, you may undergo a blood pressure or ECG test, be asked to provide blood or urine, or simply fill out a questionnaire on your health history.

For every study you participate in, you will be given an Informed Consent document to read. The Informed Consent Document provides an overview of the study, outlines your role in the study, and describes any potential risks.
Who can I contact if I have questions about the BioLinked Registry and specific clinical trials that I am eligible for?

You can contact ImpactLife for further questions on the BioLinked Registry and clinical trials/studies you are eligible for.
What happens to my information and who can access it?

Your information is stored in a private, secure database used to locate people with specific medical, family and social backgrounds that match-up with research opportunities. Only a few restricted staff from ImpactLife will have access to your information. We will never sell your information to third parties without your consent. Ever.
Download Frequently Asked Questions

Click here to download complete pdf of frequently asked questions.